Hi, my name is Ryland William Jesse. I was
born on November 19th 2003 at 8:10 am in Luverne, MN. I weight in at 8lbs 7oz and was 21.5 inches long. My dad
and mom are Nick and Summer Jesse. I also have two older brother Nathan who is 12 and Mitchell is 9. I am
a really good baby and I love to have my brothers play with me. I love to watch cartoons and Nascar.
I also love to be outside as long as it isn't to Hot out. I almost
never go to bed on time but I wake up with a smile on my face and am always ready for my breakfast. The reason
I wanted to have this web site is to keep family and friends updated on my Holoprosencephaly or HPE for short. Back
in April 2004 I had to have some testing done and the family got the news that I have HPE. It's been already a long
road for everyone and we still don't know everything and what's going to happen so I want to keep everyone informed as good as we can.
MAY 27th 2007
Ryland is doing really good and is up to 27lbs, finally. He's done
with school for a couple weeks but will start Summer school in June. If you read his Caring Bridge page you will have
seen our interesting vacation to NC. It's now summertime and busy with sports and just trying to get out more.
I am working part-time and am finding less time getting anything done. I also starting selling Chenille bibs on ebay,
not really to make lots of money but sewing lets me relax. My ebay ID is rylandmom350
That's about it, I hope we stay out of the hospital this summer.
We have 6 months till our Make-A-Wish trip, can't believe it's coming up so fast. We will be there for his 4th birthday
and will also be seeing my brother, his wife and my niece. My brother will be in FL for a nascar race and my sister
in law is going to drive down with my niece from NC and we are going to celebrate Ryland birthday together. I can't
Dec 19th 2006
Ryland was sick last week but is doing better. I don't get to this site often to update, so remember you can always
go to www.caringbridge.com/sd/ryland
to get more up to date info. Ryland started school and he loves going. The other kids who are all normal come
up and give him toys all the time. For pictures of him at school go to www.dropshots.com/rylandatschool
We are getting ready for Christmas and the kids all want snow. I know with in the next couple days they will
be asking to open, just one present. My brother and his wife are coming from SC for Christmas. We are having a
babyshower for them while they are here. They are having a girl so I have been having fun shopping. I am hoping
we can go visit when the baby is born. We will have to wait and see. I will try to get some new pictures up and
maybe some new video. Ryland isn't doing anything different. We do have a new pet, his name is Lenny, just like
the Wonder Pets.
Sept. 4th 2006
Ryland is doing really good and has went 4 weeks with out a doctor appt. We also finally
got his Bronco Walker. I put on video on his video page, make sure you check it out. The only problems we have
had lately is with the sleeping of course. Some days are better than other. It's starting to get busy again with
Nathan and Mitchell being in football and getting back to school. Nathan is in middle school now so it's kind of been
a change for him. Ryland misses them not being here in the morning but with his early mornings he's been watching cartoons
in the morning with them. We have Mitchell's golden birthday coming up on the 9th but are having his party on the 16th.
Well till next time. Almost forgot Ryland started back at swim therapy last week, he sure missed it.
Aug 3th 2006
Ryland had a Port-a-cath put in. Has has done really good but sore from surgery. I always say
if he could eat candy he would have the biggest candy bar because he is such a tough little guy.
Ryland spend the 1 thru the 5 in the hospital. He got some Flu bug and wasn't keeping anything down. We arrived
at the ER at 5am and got into a room by 10am. Kind of bumed that we had to spend the 4th of July in the hospital but
Ryland like to do that. You can read more at his Caringbridge page. www.caringbridge.com/sd/ryland
July 23, 2005
Ryland is in the hospital for a feeding tube and a nissen wrap. He is doing pretty good but wants to pull on the
tube. Read more at his caringbridge website.
Ryland has been doing pretty good. A little viral thing the last month but it seems
to have cleared up but now has a diaper rash. Sleeping is getting better but he did wake up at 4am last night.
He is on 6 different meds now and they all seems to work out for him. I now it will be hard this coming winter to keep
him out of the hospital but I am going to sure try.
Ryland started Swim Therapy about 6 months ago and that is going great. He loves the
water and we are hoping this helps get him into some type of walker. He also started OT, PT and ST twice a week for
the summertime. Ryland will be starting preschool in November when he turns 3.
He is doing a little better at everything from sitting up to holding himself up on his hands
and knees. To get more updates on Ryland please fill free to visit his caringbridge page and make sure to sign the guest
|Ryland swimming with swim collar on
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